ジェーン・パークのインスタグラム(thejanepark) - 9月13日 02時18分


Tears. Tears at every junction of this journey. This time the tears were from joy and cautious hesitation. I couldn’t believe my eyes when the corners of her mouth turned upwards this morning to what I think is a little smile. 71 days ago was the last time I saw her little grin. But I saw it today with my own two eyes. I think (hope) there is recognition there.

So many sn moms have told me about how the journey softens up after time. Not become easier, but instead of a searing pain every minute of every day, it becomes more like a dull ache that will never go away. While I haven’t reached the dull ache part yet (who knows when that will be), I am now understanding something that I couldn’t understand that was being told to me by every sn mom. I wondered if I would ever feel joy again, and I did today. Although it was fleeting and very short lived, my soul smiled looking at that little girl smile. It felt illegal to feel something other than agony because who knows when another seizure could take my girl away?

So I share this with you in hopes that it’ll bring you a little joy too. This IG community has been so supportive and helpful, whether sn parent or not. I know you are all pulling for our little girl and your good vibes, prayers and thoughtful gifts have pulled us to this point. A day that I never thought I would see again. The day that Grace smiled upon us.

And so together, we March on…

#specialneeds


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