リリ・ヨハンソンさんのインスタグラム写真 - (リリ・ヨハンソンInstagram)「It’s #rarediseaseday ⁣ Last year a doctor ruined my life by giving me two rare, severely debilitating and painful conditions. I am now chained to a bed in nightmare levels of pain. ⁣ ⁣ A year ago I walked into a Japanese hospital with minor complaints and had to be wheeled out on a stretcher screaming in pain. I have been bedridden ever since. My overnight decline from being a normal human being to completely disabled having to lay on my sides 24/7 is truly inhumane and the hospital won’t take responsibility since they know they’ve ruined my life. ⁣ ⁣ It takes everything in me to fight on minute by minute. Second by second. I lost everything and I am so alone in this horror. Imagine going from a healthy normal person to crying in pain forced to lay down to survive 24/7. Imagine having 0 quality of life and your only reason to keep fighting is the hope that some treatment will help get you some quality of life back. ⁣ ⁣ Thanks to this community I keep holding on to that hope. Thank you for fighting for my life ❤️‍🩹⁣ ⁣ Please help supporting and/or sharing my medical fundraiser to help me get out of here and get life saving medical treatment (Link is in my bio). I am so desperate for relief.」3月2日 0時19分