アシュリー・ケインのインスタグラム(mrashleycain) - 3月31日 22時55分


Azaylia had to go into theatre yesterday, for a bone marrow test to read her leukemia count, plus, a lumber puncture to extract samples to send off to Singapore. After that, doctors had to take 60ml of blood from her followed by a 4 hour blood transfusion. Later, she had chemotherapy with two separate drugs: Azacitidine and the drug we’ve been working tirelessly to get hold of, Venetoclax.

That was a tough enough because of Azaylia’s pain and discomfort from the multiple procedures. Until we got told by consultants, that they had found blasts of leukemia forming in her Cerebrospinal fluid, which can result in it finding the brain! 💔

This now means that Azaylia will now have to have another form of chemotherapy intrathecally, through the spinal tap to attack the leukemia and protect her brain. This means today she will be having a CT scan on her head to make sure we can go through with this intrathecal procedure tomorrow.

With 3 hours sleep in 2 days, the reality is that, there are no days off on this journey, no time out periods and no single second without worry or fear. If you asked me a year ago, I would’ve never imagined how strong I could or would have to be. That being said, you never really know how strong you are, until being strong is your only option. ❤️


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