ビーナス・ウィリアムズのインスタグラム(venuswilliams) - 6月12日 06時00分

So inspired by the growing number of rare disease patients and their families who are pushing the boundaries on research. 💪🏾 I know firsthand the impact of living with a rare disease — I was diagnosed with Sjogren's syndrome in 2011 but had experienced debilitating symptoms for a while that affected all aspects of my life.
The @ChanZuckerbergInitiative’s new #RareAsOne Project aims to strengthen the efforts of patient-led groups to accelerate research and drive progress in the fight against rare diseases. Learn more at RareAsOne.org

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cla1965 @venuswilliams thank you for sharing this message, I remember when you had to give up to your life as a tennis player and I can understand how everything else in your life was painful and difficult. I’m so glad to see you back on court fighting for a win as you did for the disease. I have a daughter with Cystic fibrosis and tennis is what is keeping her healthy and a strong fighter. I hope researchers will get some step forward to get closer to a cure for all these rare diseases.

ritapurl Thanks for shining a light on this issue...have a MD friend who has tried in the past to get funding for a study for drugs to treat sickle cell disease and told me how difficult it was to get money for or attention to the issue of rare diseases 👍

ahvbrown I have Sjogren’s and it is debilitating. I LVU because you don’t let it stop you. I’m so proud to have met you when you were 15 at Rockefeller Center. You make us proud. Keep up the good work. Much LOVE. Be Blessed

u03fml ❤️ I have Sjögren’s and CVID - most people have heard of neither! Anything anyone can do to raise awareness will only help our collective dream to find a cure. Thank you! ❤️

sunay_yilmaz1 MEand My Family aresuffering from ALD.THE most dangerous is mine,ourbrains are getting worse.I can prove that,we need HELP urgently

tomdevernois Je suppose que ça doit être un bon message? Merci venus

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