レナ・ダナムのインスタグラム(lenadunham) - 5月31日 03時06分
Taking a moment to recognize all my truest homies who are dealing with chronic illness and in pain. I see you, I hear you, and I’m rooting for you every day. Even if all you can do is sip coffee, you are a rollicking success. May is #EDSAwarenessMonth, so if you have Ehlers-Danlos syndromes and hypermobility spectrum disorders, I encourage you to join The EDS Global Registry to support the research of this uncommon and unknown life-threatening illness, educate health professionals, and create EDS experts globally so that our pain is understood and honored. Link in my bio. #EhlersDanlos #EDS
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sberglund3
@lenadunham thank you for spreading awareness! Another GLBTQ EDS body positivity awareness warrior @sarageurts is very sick now and anything you can do to get the message out would be great as she lost her full-time job due to her EDS chronic pain ?? https://www.gofundme.com/f/Ehlers-Danlos-Syndrome-Emergency-for-Sara-Geurts?sharetype=teams&member=2046400&utm_medium=copy_link&utm_source=customer&utm_campaign=p_na+share-sheet&rcid=16ba5822295c4ebcb6990ec139a981d2
ectvesnovskiy
@drpcs she is actually moving to a new position at the University of Indianapolis medical school, so it’s a little closer! But she travels very regularly, absolutely worth reaching out to see if she would be close to you at some point! Wishing you and your family all the best!
iridety
That’s really sad that you celebrate this. Try watching dr Mark Hymans podcasts “The Farmacy” ALL of them and check out DNRS and Annie Hopper. Drs hand you pills and don’t care about root cause.
coppoletti
Dude, thank you. Chronic Illness is NEVER talked about, though it’s sooo exhausting and often very isolating for those affected. And non-visible conditions (like mental health) can be SO hard.
natalialaurenfiore
@lenadunham Thanks for highlighting EDS awareness month and for paying tribute to EDS warriors. The two who inspire me are @life.with.stripes and @chronically.ams ?
stefawnykay
Awe I don’t have this but having mental health issues and bipolar, I’m at a dr or therapist 3x a month
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