NBC Newsさんのインスタグラム写真 - (NBC NewsInstagram)「These parents don’t know if their children will ever walk or talk. But finding other families online has given them hope. . Nearly a dozen parents of #children with very rare diseases told @NBCNews about how they’ve turned to online support groups to learn more about their #kids’ conditions. They recounted “game-changing” moments when fellow parents shared names of life-saving medication and recommended therapy techniques. And then there’s the most pressing question some #parents seek to answer in these groups: how long their child might live. . Click the link in our bio to read their stories. . 📷 @jimseida / @nbcnews」5月11日 1時02分