パール・ジャムのインスタグラム(pearljam) - 11月2日 04時55分

It is #EBAwarenessWeek! The @EBResearch has raised over $25 million and supported more than 50 innovative EB projects across the world. There are now 20 clinical trials and the possibility of cures is within reach. Please join #EddieVedder and @J_Vedder in the fight to #HealEB. ?

[BIHAKUEN]UVシールド(UVShield)

>> 飲む日焼け止め！「UVシールド」を購入する

• EBResearch
• J_Vedder