Sazan Hendrixのインスタグラム(sazan) - 12月24日 06時48分

Captain Jack ❤️Several months ago an old friend @runningkristen popped up on my IG feed and I was instantly drawn to her heart-warming posts about her baby boy Jack who is currently battling SMA. ---------------------------------------------
TBH, I felt like an idiot because I knew nothing about this disease. So.. I googled "What is SMA" and the statistics were horrifying and unsettling. I couldn't believe my eyes. What was more unsettling was to just sit back and "hope for the best." Kristen wants nothing more than to educate people about this rare disease and raise awareness for the thousands of children fighting everyday. I hope you can find the time to watch the full video on my channel and help us spread the word. We have hope and faith that this disease CAN and WILL be cured and prevented! Link in my bio. #captainjack #CureSMA #sma #ilovehim #spinalmuscularatrophy #miracleseason ❤️ ----------------------------------------------
If you feel it on your heart to donate:
https://www.gofundme.com/CaptainJackSMA1 --------------------------------------------------**UPDATED: Kristen JUST texted us that the FDA has approved #Spinraza to treat SMA. This is breaking news!!!!!! This could be a life-changing miracle for these kids. Ahhhhhh. We did not know this would happen today - the same day we decided to share Jack's story. God hears us I KNOW IT!!! #curesma

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